Angels & Heroes

Meet the beautiful faces of Childhood Cancer.
Every one of these little heroes has been through more in their young lives than anyone ever should.

Not all superheroes wear capes

Luke

Luke

DSRCT
Luke
Luke

DSRCT

This Golden Octopus Hero is a hero in many ways.
He has loaned himself to us to help the kids, but he is a champion in his own right.
The amazing Luke from Luke Spalding Racing has been battling a rare childhood cancer for a few years now,
however he raises money to buy iPads for sick kids in hospital every Christmas.
He is a champion Formula 3 racing driver and a shining example to all our kids of strength and kindness.
Thank you Luke for showing them all what can be achieved.
Love you to bits Keely x

Frankie

Frankie

Acute Myloid Leukaemia
Frankie
Frankie

Acute Myloid Leukaemia

Our very special Golden Octopus Hero is a true hero in every sense of the word.
She still has a long way to go and we are so grateful to her Mum and Dad, Kate and Duncan and her two sisters Madison and Camilla for sharing her story with us.
This is her story as told by her beautiful family.

Frankie has a smile that lights up a room with a kind, boisterous and hilarious personality to match. She loves kittens, barbies, princesses and playing hide and seek. Her favourite colours are pink and purple. She seems just like every other 3 year old girl, except she’s not. She is enduring something that no person should ever have to.

One Sunday night in February this year, Frankie was diagnosed with Acute Myloid Leukaemia (AML). AML is rare, aggressive and comes on very suddenly. Within days of her diagnoses her first round of high risk chemo began which was soon followed by the second. After weeks of horrific symptoms unfortunately her results returned showing that the chemo had not worked and the leukaemia had continued to spread.
From here, her best chance of survival was a Bone Marrow Transplant. After a search of the world donor registry, there was no suitable donor match for Frankie as she has a rare tissue type. Instead they had to use a cord blood donation, which means they have one shot at the transplant with just a small amount to work with. Once they have used this there are no other matches left for Frankie. During this process she remains in isolation, unable to talk, eat, smile or sit up. Our beautiful girl is merely a shadow of herself. She continues to receive blood transfusions and go under anaesthetic for countless procedures to fight the horrific health complications her cancer and transplant have caused.

Throughout her battle Frankie’s parents have had to remain at the hospital 24/7 to help care for her on a rotating shift. One night they will stay with Frankie the other night they are home caring for their other
their other daughter, Camilla who is in her first year at school

She is our brave beautiful hero

Thank you so much, you are all heroes.
Frankie couldn't get a bone marrow match because we don't have enough people put their name on the National Bone Marrow Register, please do.
Frankie is kept alive by blood transfusions and many more like her are, please become a blood donor.
Brave and gorgeous Frankie we will battle together for all of our kids.
Keep fighting beautiful we are right beside you.
Love Keely xxx.

Ashton

Ashton

Cancer
Ashton
Ashton

Cancer

Cleo

Cleo

Cancer
Cleo
Cleo

Cancer

Cleo

Ryder

Ryder

Medulloblastoma
Ryder
Ryder

Medulloblastoma

Our amazing and special Golden Octopus Hero this week is the fantastic Ryder.
He has been through so much and still has so far to go.
He can't smile due to the damage his tumour and surgeries have caused and he will have lots of rehabilitation and we will be the first to post a pic of him smiling as soon as his wonderful mum Jemma shows us one.
Thank you Jemma and Aaliyah his beautiful sister and his best mate Hiro for sharing his story with us.

Hi my name is Jemma and my son Ryder was diagnosed on the 11th Feb 2015 with a Medulloblastoma Brain Tumour.
He has/is/will endure so much from his brain injury and harsh treatments, but most of the time he remains a happy little boy.

Ryder remains NED after having a full resection, 6 weeks of Radiotherapy and 7 rounds of Chemotherapy. He has 2 more rounds left then we can start to concentrate more on his rehabilitation.

Ryder loves nothing more than being at home with his family. He has a beautiful older sister Aaliyah whom he adores. He also has a very special friend at home by the name of Hiro. Hiro was born on the same day as Ryder's tumour resection and he is a gorgeous Ragdoll. Ryder named him after the little boy in Big Hero 6, his favourite movie. ♥️

Thank you so much Jemma, this is so unfair that Ryder has to suffer all this and yet he is so young.
We need to stand together and fight to spread awareness and make the government listen to increase funding into research for our children.
We will keep fighting Ryder and you keep fighting too little buddy.
All my love Keely xx.

Will

Will

Acute Lymphoblastic Leukemia
Will
Will

Acute Lymphoblastic Leukemia

Will was diagnosed with ALL in August 2006 when he was 18 months old.
He had many many complications during his 14 month stay in Brisbane,
part of them meant he ended up loosing his oesophagus (they made him a new one out of his stomach),
terrible chest issues and an ongoing chronic cough.
Will is just beautiful and still has an amazing smile.
Thank you Will and we will continue to fight.
Love Keely xx

Olivia

Olivia

Acute Lymphoblastic Leukaemia
Olivia
Olivia

Acute Lymphoblastic Leukaemia

Our beautiful Golden Octopus Hero is the lovely Olivia.
Her Mum Allison, Dad Michael, Sisters Brooke and Rachael, brothers Nathan and Scott and Labrador Piper bring us her story to share.

Olivia's journey with Acute Lymphoblastic Leukaemia began late November 2015. She had started limping on one leg, then both of them, she started to lose her appetite as well as not wanting to wake up til lunchtime. Eventually Olivia collapsed from the pain in her legs and had to be taken by ambulance to our local hospital. Investigations were carried out over the next few days and we were flown to Brisbane's Lady Cilento Children's Hospital where a final diagnosis was made. It was also found that she'd had stress fractures to both tibias that had gone undetected on her initial x-Ray's.
She started her intensive chemotherapy straight away. This six month phase turned into eight months as Olivia suffered numerous side effects including a mini seizure due to a blood clot in the lining of her brain, a seperate incident where she had mild swelling of her brain and a swollen disc in one of her eyes. She also had a stay in P.I.C.U after experiencing an infection to her port and very low blood pressure.
Olivia has experienced continuous pain in her bones and this has restricted her ability to fully carry out her physio and she is currently still unable to stand or walk yet.
She is now in week 3 of her 2 years maintenance treatment and is showing signs the pain levels in her legs have lessened and we are feeling confident Olivia will be able to participate more fully with her rehabilitation exercises.
We are staying positive and hope and pray Olivia remains in remission and she manages to walk again as soon as possible.
Thank you for reading our daughter's story and for your help.

We cannot thank you all enough for sharing your beautiful Olivia with us.
She should be at home singing and dancing to her favourite pop stars not sitting in a hospital bed and missing her childhood.
Olivia I promise we will continue to fight and raise awareness so one day no child will suffer.
All my love Keely xx

Daphnie

Daphnie

Langerhans Cell Histiocytosis
Daphnie
Daphnie

Langerhans Cell Histiocytosis

Our absolutely gorgeous Golden Octopus Hero is a little country cutie Daphnie.
She is just the most beautiful and toughest little girl you could ever wish to meet.
Daphnie has the same cancer as I do, unfortunately there is no cure but she is a fighter and she will win.
Her amazing family have so kindly shared her story with us to help raise awareness for childhood cancer but also to raise awareness that LCH is a cancer that people don't even realise exists.
Thank you so much, this is her story as told by her loving family Sarah, Clinton, Callum, Ebonnie and Milton.
With help from her dogs Grunt and Jacko and all the chickens. Xx

Daphnie was 10 months old on the 13 march 2014 when we got the devastating news that our little girl has multi system Langerhans Cell Histiocytosis (LCH).
Daphnie had LCH in her orbital region, liver, spleen, skin and bone marrow.
Daph has been on numerous different chemo treatments, relapsing twice on treatment.
Daph has still been receiving treatment for the last 635 days and still has a long road ahead.
Daphnie is a real little fighter.

That's nearly her whole life on treatments and she still has a huge battle ahead of her.
We need more help to come together as one voice and raise awareness that our kids can't fight alone, to let the government know our kids need more than 4% funding.
Daphnie together we will fight, together we will win.
You have my promise to never give up fighting.
Love always Keely xxx

Tobi

Tobi

Cancer
Tobi
Tobi

Cancer

Tobi

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