Angels & Heroes

Meet the beautiful faces of Childhood Cancer.
Every one of these little heroes has been through more in their young lives than anyone ever should.

Not all superheroes wear capes

Liz

Liz

Acute Lymphoblastic Leukaemia
Liz
Liz

Acute Lymphoblastic Leukaemia

Our absolutely gorgeous Golden Octopus Hero is the very brave and beautiful Lizzie.
We are honoured for her Mum Mel to share her story with us, thank you Mel and Lizzie.
Lizzie comes from the most beautiful place in the world the Atherton Tablelands.

This is her story as told by her beautiful Mum, and her pet puppy Jasmine:

Liz was diagnosed one month shy of her second birthday with b-cell ALL (standard risk).
I'm a GP (Doctor) and had noticed some bruises on her on the Wednesday. Just the legs.
And I thought it was because of daycare or usual toddler clumsiness.
She had been a bit off the last week or two with viruses and usual daycare bugs. And she was a bit pale, but it was winter.

I told myself she was fine and then her gums bled when I brushed them the next day.
I took her to ED with a heavy heart and premonition of what was to come.
A junior resident handed me the blood results and that is how I was told Liz had leukaemia.

Despite the poor start Liz has traveled well. She is an amazing and strong young girl.
We are due to finish maintenance this year if all goes well, she will be enjoying having a normal life - she loves to dance ballet, swims, LOVES arts and crafts and thinks that unicorns are awesome.
She has a pet puppy - Jasmine - whom she adores.
I'm a single mum. My Mum, Sue, took a lot of time off and came to Brisbane to help me get through Lizzie's treatment which we can't thank her enough for that.

It hasn't always been smooth - Liz suffered a blood vein clot (similar to a stroke) as a result of one of the chemo agents, but fully recovered after a week or so in hospital and some ICU input.
As a Doctor I was shocked and appalled at the lack of funding for children's cancer and also at the outdated therapies we use.
I cannot believe these kids are given adult doses of medications for their chemo and without research these treatments won't change.
Kids will suffer side effects of the crappy chemo we feed them like Liz did.

Liz is has a good prognosis, there are so many others who won't.
It breaks my heart. Anyway, I'm passionate and I care.

Our world and our hero

Lizzie, Mel, Sue and Jasmine we can't thank you enough for sharing your world with us.
Mel you are so right there isn't enough funding, 4% just isn't enough that is why we need to increase awareness about our kids as awareness leads to increased funding and that leads to a cure.
We will fight this together and Lizzie together we will win. Keep fighting beautiful.
Love to you all, Keely xxxx

Bayley

Bayley

Cancer
Bayley
Bayley

Cancer

Bayley

Edmund

Edmund

Langerhans Cell Histiocytosis
Edmund
Edmund

Langerhans Cell Histiocytosis

Our amazing Golden Octopus Hero is our amazing Edmund.

His beautiful family have happily shared his story with us which is wonderful.

This Is Edmunds story as told by his beautiful Mum Natasha, Dad Andrew, twin siblings Oliver and Grace and Taz, Bunny and Tiny.

Just after Christmas this year we noticed Edmund had a bump on his forehead. We assumed being a nearly 2 year old boy he had bumped his head on something. After a few weeks the bump had not gone so off to the GP we went, thankfully we have an amazing GP who decided to get it checked out just in case, ......... well from there there was a whirlwind of tests to finally come to a diagnosis of LCH (langerhans cell histiocytosis).

Edmund had surgery to remove the lesion in his head which has eaten a hole in his skull and attached to the lining of his brain. For now and hopefully forever that is all the treatment he needs, he will get checked regularly to ensure everything is going to plan but so far so good. He has been an absolute superstar through the whole process, and all the staff at the Royal Children's Hospital Melbourne have been amazing. Edmund is known as 'Mr cheeky pants' by his 4 year old twin sibling's Oliver and Grace and they all love playing outside together.

Our amazing hero

Thank you so much for sharing your amazing son's story with us.
This type of childhood cancer is the same as mine and is very rare but there is a lot of work happening in the US to find a cure.
We will keep spreading awareness with help from parents like yourselves and the strength of kids like Edmund, Mr Cheeky Pants we will continue to fight this beast together.
Love Keely xxx.

Claire

Claire

Brain Cancer
Claire
Claire

Brain Cancer

This beautiful Golden Octopus Angel Hero is the gorgeous Claire.

Her story is written by her loving family Robert, Lynette and Liam.

Claire Elise Ollier had a zest & enthusiasm for life. Her smile captured hearts & won admirers, she seemingly had a bright future to look forward to.

At the age of 8, Claire was diagnosed with a rare brain tumour. Claire’s initial symptoms were very subtle... She was often tired. As parents, we put that down to long days at school & the approaching end of semester.
You see, there was not an activity that Claire was not involved in: she played tennis 3 times/week, danced 3 times/week, was in the school choir, the school orchestra, attended diligently to her school work and generally played hard. As parents, we were exhausted, just keeping up with her.So in the final weeks of term 3, when Claire would come home from school and just want to watch TV we thought, this is what normal kids probably do...

Claire came second in her school cross country, just 2 months before. There was absolutely no lead up to ever thinking our daughter had cancer, let alone brain cancer.

On Father’s day, 2013, Claire’s father noticed an odd, high stepping gait with Claire & took her to the Emergency Department at the local Children’s Hospital. It took some convincing, 3 doctors & 4 hours later, Robert had managed to convince the Doctors, that he thought his daughter had a brain tumour.... Parents know their children best! We hoped & prayed that he was over-reacting... The next day, a MRI was scheduled & a large tumour was discovered. Our perfect world, had crumbled within 2 hours....

The exact diagnosis of the tumour is still up for debate & the diagnosis changed often, since initial discovery, to final treatment. Following biopsy, we were advised that Claire’s tumour was ‘curable’, words every parent wants to hear, to only later, being advised that the type of tumour was ‘terminal’.

We never gave up hope, convinced that our daughter was the one that would beat the cancer!!

We had protected our children from all types of childhood dangers, what we never anticipated was cancer... We did not have a family history of cancer, until Claire’s diagnosis. We didn’t know that brain cancer has the highest incidence of childhood mortality. Tragically, we were to learn that fact later...

During Claire’s illness, she was involved in fund-raising activities, for the Cure Brain Cancer Foundation. In Claire’s memory, we are continuing to fund-raise for childhood brain cancer research. We don’t want any other family to experience the devastation of a child/sisters death to brain cancer. If your would like to assist us in our mission, please visit Cupcakes for Claire. At one point, we were advised by Claire’s treating team, ‘that it would be easier to write a book about what we don’t know about childhood brain cancer, than what we do know!’ We want the medical profession to be all over this disease & how to cure it!

We now face everyday, with the jewel in our family crown missing & Claire’s loss is felt in everything we do as individuals & as a family unit. We will never be whole again!

Thank you so much Keely & Cathy for honouring our precious girl.

Kind regards,

Lynette

A message that Lynette and Robert both nurses would like to be told to all parents who are the advocates for their children, whether that is for cancer or any sickness, you are allowed to get a second opinion if you have a gut feel that things are not going right or are going too slow.

Cupcakes for Claire is set up in Claire's honour and will assist with any fundraising activity you would like in the Brisbane, Bellbowrie area.

Thank you to this beautiful family and all my love to you all and the beautiful Claire, who is sending her magic wishes and sprinkling fairy dust down on every cupcake her mum makes.

Love always Keely xxx

Gabby

Gabrielle

Acute Lymphoblastic Leukaemia
Gabby
Gabrielle

Acute Lymphoblastic Leukaemia

Our amazing and so cute Golden Octopus Hero is the beautiful Gabby.
Her amazing family have shared her story with us which are so grateful for.
This is her story as told by her Mum Susan, Dad Kurt, Sister Samantha and Beau the Boxer.

On 26th February 2016, Gabby fell ill suddenly with a fever and vomiting. She was taken to the Warwick hospital but was transferred to the Lady Cilento that afternoon. Gabby spent 4 days in PICU having numerous tests which revealed she had Acute Lymphoblastic Leukaemia.

It was the last diagnosis we expected as she appeared to be a well 2 year old....

Gabby spent 2 weeks on the ward before she was discharged. As we are from a rural area, we stayed at the leukaemia village until we were discharged back to Warwick.

Gabby has not been hospitalised since diagnosis, managing to stay well even through her 'intensive therapy'. We have learnt she is one super strong girl. There is still a lot more chemo, lumbar punctures and blood tests ahead. Treatment will continue until May 2018. We can only hope our brave battler continues along the journey as well as she has been.

Thank you so much for sharing your amazing girl with us.
She shouldn't have to show everyone how strong she is against all the treatments and everything that goes with that, she should be playing with her dolls and her dog.
Gabby we will continue to fight together, we will continue to raise awareness so funding is increased for research and I will never give up trying.
Sending all my love beautiful girl.
Love Keely xxx.

Liam

Liam

Acute Lymphoblastic Leukaemia
Liam
Liam

Acute Lymphoblastic Leukaemia

Our truly amazing Golden Octopus Hero is the fantastic Liam.
His Mum Emma, Dad Andrew and brother Noah with his dog Billy are so kind to share his story.

Liam was diagnosed with a rare form of leukaemia called Philadelphia Positive ALL in March 2015 aged 6.

He had had a cold that wasn't getting better so we took him to the local hospital as he was struggling to breath, which they then sent us to the Womens and Childrens hospital in Adelaide.
They noticed he had a slight rash on his tummy so a blood test was done.
His white cell counts were quite high. At this point we had no idea what was ahead of us.

Liam has had quite a few delays through the last 12 months, from infections to a perforated bowel, but has responded well to treatment and will start maintenance very soon.
Liam loves playing cricket, footy and basketball with his Dad Andrew and older brother Noah and his dog Billy now that his strength is returning.

We are so proud of the way he has handled everything that he has been through and the support from family and friends has been amazing.

Our cheeky little hero.

Thank you so much for sharing your amazing little man with us.
He is just beautiful and definitely deserves the hero title.
Liam keep fighting and we will all fight together to raise awareness and one day a cure.
Sending a big OLLEE hug.
Love to you all Keely xxx.

Darcie

Darcie

Cancer
Darcie
Darcie

Cancer

This is the gorgeous Darcie!
One of our beautiful Octopus Heroes!!
She is the most beautiful little girl you will ever meet.
Please help us increase awareness on childhood cancer!
Love Keely x

Jesse

Jesse

Hemophagocytic Lymphohistiocytosis
Jesse
Jesse

Hemophagocytic Lymphohistiocytosis

Our absolutely amazing Golden Octopus Hero is the fantastic Jesse.

His beautiful family Mum Bec, Dad Dave and brother Trae, Stoopy, Zeb and Murphy have so kindly shared his story with us.

Jesse came down sick last September with extreme temps and a rash. We had numerous visits to the doctor and even a week in hospital with so many tests such as MRIs CTs, ultrasounds and bloods tests over and over such that he had no veins left except between his toes. All this and still without any tests giving us an answer. They discharged Jesse and 3 days later his eye began to swell and we took him back to the doctor with them saying it was an allergy. When he could no longer open his eye and his temp hit 41.9 we rushed him to hospital. We were then flown to Adelaide by RFDS and thats when we knew something wasn't right. Adelaide thought it was a virus but did a bone marrow biopsy which was inconclusive so we scheduled another one in a week. All week he spiked 41 temps and all the hospital could do was give him IV antibiotics and panadol. The second bone marrow was done and thats when our lives changed. He was diagnosed with T cell lymphoma which had caused HLH .(Hemophagocytic lymphohistiocytosis). So we were dealing with 2 things and the Doctor wasn't confident of his survival. Luckily the next day he began chemo and thankfully responded and his temps settled and his eye began to open. Once they had the HLH under control they began the CHOP protocol of 6 cycles of chemo. Jesse has just completed these 6 cycles and have our check up 11th may. As we live 500 km from treatment Jesse has been separated for long periods from his home, younger brother Trae and his pets. Great Danes Stoopy and Zeb and he was given a companion toy poodle puppy in March, Murphy who he also misses.

Jesse enjoys playing Playstation and movies and spending time with his friends and brother.
Even though it was been tough it has bought us closer together and made us slow down and enjoy the small things.

We used to worry about some stuff that really is insignificant x

He is our champion

Thank you so much for sharing Jesse's amazing story, keep fighting little man you have a huge battle but you will get through it.
Our foundation is aiming to stop families having to travel so far away from friends and families and it will take a while to get right across Australia but we will get there.
Love to you all Keely xxx

Charlee

Charlee

Diffuse Intrinsic Pontine Glioma
Charlee
Charlee

Diffuse Intrinsic Pontine Glioma

This beautiful Golden Octopus Angel Hero is the absolutely gorgeous Charlee.

This was kindly shared by her loving family, Jaime, Darren, and her little brother Ryan (who she called her little rebel).

Charlee was your typical 3 year old princess until 1st April, 2013 when she was diagnosed with DIPG-Diffuse Intrinsic Pontine Glioma.
Life as we knew it was no longer, something that nothing could ever prepare you for, something you never thought could possibly happen to you,
to hear the words that your 3yr old daughter has a 0% chance to beat this and that we had just 9-12 months at best left with her by our side.

Charlee had such a passion for life, throughout her whole 19month fight with DIPG she remained positive, She never lost her passion for life and lived each day to the fullest smiling and teaching us all to never give up, to cherish the moments. She had such a cheeky little personality & loved joking around and having a giggle.

Our princess gained her wings on 2/11/14 and will be forever 5. Our lives will never be the same again,but how blessed we are that she chose us to be her parents.
Charlee's little wishes will continue to make a difference and raise awareness and funding in her memory, for without hope what do we have?

Charlee's Little Wishes is her support page.

Thankyou for sharing your precious angel with us, love always Keely.
I promise I won't stop fighting for them all xx.

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