Angels & Heroes

Meet the beautiful faces of Childhood Cancer.
Every one of these little heroes has been through more in their young lives than anyone ever should.

Not all superheroes wear capes

Matilda

Matilda

Cancer
Matilda
Matilda

Cancer

Our very special Golden Octopus Hero is the absolutely adorable Matilda.
Her Mum and Dad, Millie and David have so kindly shared her story with us.
This is her story as lovingly told by Mum and Dad (Millie and David), Samuel and Rosie May.

After 6 weeks of attending a rural hospital time and time again because Matilda started limping and then after being sent away from a regional hospital with barely a look at Matilda, finally, a lovely local hospital doctor explained her symptoms to Lady Cilento who accepted Matilda as an in-patient transfer.

Within hours of being seen at Lady Cilento specialist teams quickly noticed Matilda's problem was not her leg.
After a CT scan and subsequent MRI Matilda was diagnosed with a rare and aggressive cancer throughout her brain and spine.

Matilda has an older brother and sister who dote on her, Samuel (13) and Rosie-May (10).
Millie and David are both teachers and migrated from Perth, WA to rural Queensland in January 2015 with their three beautiful children seeking a more rural lifestyle.

Thankyou Millie and David.
We will all keep praying for a miracle and strength for beautiful Matilda and for all of you.
We won't ever give up the fight to help these children and find a cure.
Love always Keely xxx

Caitlin

Caitlin

Cancer
Caitlin
Caitlin

Cancer

This is beautiful CJ.
She is an octopus hero with a great smile.
Love Keely x

Ryan

Ryan

Malignant Melanoma
Ryan
Ryan

Malignant Melanoma

This weeks Golden Angel Octopus Hero...

Sometimes a story touches your heart more than others and as much as I have loved and been touched by every one of our Golden Octopus Heroes, Angels and Buddies, this story has really touched my heart. I cannot say how privileged we are to have Lyn, Iain, Lauren and Thomas share with us the story of our beautiful Golden Angel Octopus Hero Ryan.

RYAN JAMES DOBBIE
13/04/2009 to 3/11/2010

We welcomed our baby boy Ryan into the world on Easter Monday, 13 April 2009. When they put Ryan onto my chest I saw the most beautiful big blue, wise eyes looking back at me. That was not all that I noticed. It looked like he had a mole/birthmark on his forehead and I asked the nurses if that was the case. They were busy as I had a complication with my placenta and little did I realise he also had a birthmark/mole that covered most of his body.
Whilst I was rushed in for surgery, my doctors advised me they had to send photos to Townsville to confirm what Ryan was born with. I did not get to see my little man until the next day, where it was confirmed Ryan was born with a Giant Congenital Melanocytic Nevus and his was a bathing trunk type as it covered him from his knees to the middle of his back and belly. He also had numerous other moles called satellites.
We were told that his condition was pre-melanoma and the chances of it turning to malignant melanoma was between 2-4% of the whole population, so we felt very relieved. There were several tests we had to do to ensure there was nothing physically or mentally wrong and he got the all clear.

During this time, Ryan was the most perfect and lovable little boy. It was very difficult to come to terms with his condition, however his personality outshone the physical imperfections.
Ryan was the most charming little boy and strangers would often comment on how handsome he was.
Most people did not even notice his moles. He always had a smile for everyone and his blue eyes always sparkled.
He would even yell at people who walked passed him without saying hello to him.

Ryan had five surgeries to try and reduce some of his mole and to ensure the ones that looked abnormal were OK.
When Ryan was 16 months old, he was playing outside and fell over. He cried, which is normal for any child and then he got up and continued as normal, but he was limping a little.
He was still like that the next day, so whilst I was at work, my mum took him to the doctors and he was referred for an x-ray, just because the doctor knew Ryan had a very high pain threshold.

That day the x-ray was done and we got a phone call from the doctor saying he needed to see us. That instant, I knew it was serious.
The doctor said there was something unusual and we were asked if there were any previous injuries Ryan had suffered, which of course there hadn’t.
Two days later we were at the Cairns Base for a paediatrician’s appointment and I took the x-rays and report with me. The on call orthopedic surgeon was not there, but was going to review it and get back to us.
The next day our Paediatrician’s office phoned and advised they had made an appointment on Monday for an MRI to be done in Brisbane and that we had to fly down on Sunday.
I said, no as Ryan had to go there anyway on Tuesday for surgery, however they insisted we went sooner.

My mum went with me as she didn’t want me to be on my own. The MRI was done and Ryan was gone for hours, it was breaking my heart.
That afternoon when Ryan was in recovery and mum had gone back to our unit to make lunch, the oncologist came to me and said the results were back.
He confirmed it was cancer, so I immediately thought Ryan would lose a leg and he would have to learn to walk again.
I was devastated to be told that Ryan’s cancer had broken the leg he was walking on.
The cancer was also through his whole body (liver, bones etc) and that there was nothing they could do for us.
I had to get the doctor to get my mum to come and tell her as well as me as I couldn’t deal with this news alone.
My mum came and were pretty much told us that Ryan did not have a lot of time and asked us what we wanted to do.

My husband and daughter flew down from Cairns and we made memory items, videos and went to zoo’s etc.
We all slept on the floor together and we cried when the kids were asleep.
The palliative care team and social workers and the doctors were wonderful to us. A plan for his management was set up and we came home to enjoy every last minute with Ryan.

We had a party for Ryan. Friends and family and strangers all contributed. There was a merry go round, zoo to you animals, face painting, jumping castle, games, presents and lots of food.
Ryan was so happy, he was even a bit naughty with my CDs. He got sprung rubbing them into the ground and just gave a cheeky smile when he got caught.
Ryan was very mischievous and happy. He never made a fuss and he had been through so much with the operations, he was so tough and brave.
He had such a boisterous laugh and he and his sister loved each other dearly.
Ryan lived life to the full and was always full of energy and knew he was loved.

Ryan passed away 11 weeks after his diagnosis and our hearts were forever broken.
He was only 18 months of age.
We only got to celebrate one birthday and Christmas with him and those days will be forever in our minds and hearts.

Always and forever loved and in our hearts
Mum, Dad Lauren and Thomas.

Thank you so much for sharing your gorgeous boy with us.
He will touch many more hearts and help to let everyone know that childhood cancer isn't rare.
We all need to stand together to fight this and make sure other families don't go through this anymore.
I promise you Ryan and your amazing family I will never stop trying to make the world listen and fight for our kids.
All my love Keely xx

Kybie

Kybie

Brain Cancer
Kybie
Kybie

Brain Cancer

Our amazing and cute Golden Octopus Hero is the wonderful Kybie.
Kybie was diagnosed with brain cancer in 2013 and has come a long way following many treatments and surgeries.
Like myself Kybie loves Lee Kernaghan, our wonderful ambassador and got the chance to meet him recently.
Keep singing Kybie.
Lots of love Keely xx.

Truman

Truman

Hodgkins Lymphoma
Truman
Truman

Hodgkins Lymphoma

I am so pleased to honour a wonderful hero, Truman.
Truman's Mum Michelle and Dad Wayne bring us his story below which we thank them so much for.

Truman was rushed to Lady Cilento Children's Hospital on Good Friday 2015.

He was later diagnosed with Hodgkins Lymphoma stage 3B. He was 15yrs old.

He had a small lump pop up next to his collarbone. He had not been 100% but like running at 90%. He was 15 and about 6ft 2 with lots of growing. We Took him to the doctor and after a week of blood tests and no answers except major inflammation, but no idea where, and because it was Thursday before easter break they decided to do a CT scan.

7am Good Friday we got a call from doctor to go straight to Lady Cilento Children's Hospital Emergency they are expecting him. The CT showed all of his lymph glands enlarged. When we finally got to see a doctor at LCCH he said he would have got Truman flown down on his results earlier but our Doctor told him he was still doing everything he normally would. The LCCH doctor also said when he saw how tall he was that he shouldn't be able to stand up with the amount of red blood cells he had. After the biopsy we were able to go home on Sunday and wait for a diagnosis. It took about a week and the longest week ever.

We were putting cattle through the yards when the call came through. I'll never forget because i was on headbale and I'd left it open to answer the phone and all I could hear was me getting in trouble for letting some cows through, and the Oncologist asking "is this a good time"?? However when is a good time to find out your child has cancer?
So we went back for more testing to find out what stage he was at and then a treatment protocol.

He had 6 months of chemotherapy and 1 month of radiotherapy. He finished his treatment in time to have Christmas at home.

Truman's time in Brisbane was difficult as he is a country boy and he loves fixing machinery. Every chance we got to come home he was straight down to the shed working on a little dozer he had started to rebuild before being diagnosed.

Thank you so much Michelle, Wayne, Kasey and Codie for sharing your amazing man with us, it is such an honour.
Truman you are just amazing, you have fought an enormous battle.
We will continue to fight for all of you so no one has to go through this anymore.
By sharing, your story helps raise awareness and by doing that we will hopefully one day get the government to increase the funding for research which is only 4%.
Keep fixing those dozers that is awesome.
Love Keely xx

Eli

Eli

Wilms Tumour
Eli
Eli

Wilms Tumour

Our very cute Golden Octopus Hero is the amazing Eli.

This is his story as told by his loving family, Simon, Kim, Sabastian and Indi with the help of his cat Mookie xx.

Our gorgeous little boy, Eli was diagnosed with a Wilms tumour a few months after his second birthday.
We were sent to Brisbane and didn't come home for nearly 3 months. Eli had 6 months of chemotherapy, 7 days of radiation treatment and surgery to remove the tumour.
He also had many other hospital procedures and stays along the way.
Throughout this journey there was not a day that Eli didn't just get on with it.
Always smiling and playing with his cars!! He even had an extra special present with the arrival of his baby sister.

We learnt fast and had an amazing team of doctors, nurses and social workers to support as along this journey.
Eli now has 3 monthly scans for check ups. To look at Eli you would have no idea what this bright eyed monkey has been though in his short life.
We really feel lucky and my heart goes out to all the children still fighting their battle!

Thank you so much.
Beautiful kids like Eli don't deserve this pain and suffering and their families don't deserve the heartbreak.
We need to fight together to change the way the world sees childhood cancer and get the recognition it needs.

With many hands we shall be strong, with many hearts we shall be one and together we will find a cure, together this race will be won.

Love always Keely xx

Zavier

Zavier

Cancer
Zavier
Zavier

Cancer

Zavier

Tyrone

Tyrone

Non Hodgkinson’s Lymphoma
Tyrone
Tyrone

Non Hodgkinson’s Lymphoma

Our gorgeous and brave Golden Angel Octopus Hero who I am very proud to honour is the amazing Tyrone.
Tyrone’s Mum and brothers together with his pets, Buddy, Meow, Bossy and Garfield have so generously shared his story for us.
This is his story as told by his Mum Eve.

Tyrone Kory Eldershaw age 6yrs old looked up to his 3 big brothers Zac age 14yrs, who loves gaming on YouTube and being with his friends, Dylan age 11 yrs., who adores computers & spending time with his Pop, and Brodie 9yrs, who loves SpongeBob & Minecraft.
Brodie was a little older than Tyrone, everyone thought they were twins and they never left each other’s side, Tyrone was a cheeky little 6yr old boy who loved laughing & sharing his smiles with those that he would meet, Tyrone loved his garden and took pride in caring for it and loved his family pets of 3cats Meow, Bossy & Garfield and loved his dog a staffy called Buddy.

Tyrone enjoyed playing Thomas the tank engine and batman, minions & can’t forget Mr maker. Tyrone grew ill overnight and by the next evening we had the worst news I’ve ever been told, Tyrone had non Hodgkinson’s lymphoma (Berrkits). Tyrone fought a hard long battle and became my HERO but Tyrone’s heart grew tired 6 months to the day.

17/06/2015 we were given the bad news 17/12/15 three angels came and collected my Tyrone from my arms, although I didn’t want to let go " I heard a whisper saying live for me now Mummy" I carry on each day fulfilling Tyrone’s wishes (to care & bring smiles and support to his friends that are still undergoing treatment).

To share his toys with his beloved so he can still bring them smiles as he always had done - Tyrone’s wishes will keep Tyrone’s brothers and I busy until we meet again.
I will be strong and brave as my son taught me and I will fight each day for a cure.
Rest in peace my sweetheart Mummy loves you so much and I’m so proud of you.
Love you always
Your Mum and loving brothers, Zac, Dylan and Brodie.

Thank you so much for allowing us to honour your amazing son.
We will continue to fight as well and share as much as we can to increase awareness so one day our government will listen for our kids.
All my love Keely x.

Donovan

Xavier

Rhabdomyosarcoma
Donovan
Xavier

Rhabdomyosarcoma

Our beautiful Golden Octopus Hero is the amazing Xavier.

Xavier's loving family Nerida, Donovan and Indyra have kindly shared their story with us.

Xavier was 23 months old when he was diagnosed with rhabdomyosarcoma in his bladder.
After the discovery of the tumour in the Townsville Hospital we were flown to the Lady Cilento Children's hospital in Brisbane where the cancer was confirmed through extensive tests and a treatment plan was organised.

The plan meant 45 weeks of intensive chemotherapy and radiation in Brisbane.
With Donovan and his sister still in Townsville the decision was made to relocate to Brisbane to ensure the we could be together as a family.

Xavier misses his cat Wilson but unfortunately he couldn't be taken that far in a car to be with him.

Thankyou Nerida and Donovan so much for sharing your beautiful boy with us and we will keep trying to help you and keep everyone updated about your beautiful boy.

Love Keely xx.

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