Angels & Heroes

Meet the beautiful faces of Childhood Cancer.
Every one of these little heroes has been through more in their young lives than anyone ever should.

Not all superheroes wear capes

Darcie

Darcie

Cancer
Darcie
Darcie

Cancer

This is the gorgeous Darcie!
One of our beautiful Octopus Heroes!!
She is the most beautiful little girl you will ever meet.
Please help us increase awareness on childhood cancer!
Love Keely x

Jesse

Jesse

Hemophagocytic Lymphohistiocytosis
Jesse
Jesse

Hemophagocytic Lymphohistiocytosis

Our absolutely amazing Golden Octopus Hero is the fantastic Jesse.

His beautiful family Mum Bec, Dad Dave and brother Trae, Stoopy, Zeb and Murphy have so kindly shared his story with us.

Jesse came down sick last September with extreme temps and a rash. We had numerous visits to the doctor and even a week in hospital with so many tests such as MRIs CTs, ultrasounds and bloods tests over and over such that he had no veins left except between his toes. All this and still without any tests giving us an answer. They discharged Jesse and 3 days later his eye began to swell and we took him back to the doctor with them saying it was an allergy. When he could no longer open his eye and his temp hit 41.9 we rushed him to hospital. We were then flown to Adelaide by RFDS and thats when we knew something wasn't right. Adelaide thought it was a virus but did a bone marrow biopsy which was inconclusive so we scheduled another one in a week. All week he spiked 41 temps and all the hospital could do was give him IV antibiotics and panadol. The second bone marrow was done and thats when our lives changed. He was diagnosed with T cell lymphoma which had caused HLH .(Hemophagocytic lymphohistiocytosis). So we were dealing with 2 things and the Doctor wasn't confident of his survival. Luckily the next day he began chemo and thankfully responded and his temps settled and his eye began to open. Once they had the HLH under control they began the CHOP protocol of 6 cycles of chemo. Jesse has just completed these 6 cycles and have our check up 11th may. As we live 500 km from treatment Jesse has been separated for long periods from his home, younger brother Trae and his pets. Great Danes Stoopy and Zeb and he was given a companion toy poodle puppy in March, Murphy who he also misses.

Jesse enjoys playing Playstation and movies and spending time with his friends and brother.
Even though it was been tough it has bought us closer together and made us slow down and enjoy the small things.

We used to worry about some stuff that really is insignificant x

He is our champion

Thank you so much for sharing Jesse's amazing story, keep fighting little man you have a huge battle but you will get through it.
Our foundation is aiming to stop families having to travel so far away from friends and families and it will take a while to get right across Australia but we will get there.
Love to you all Keely xxx

Charlee

Charlee

Diffuse Intrinsic Pontine Glioma
Charlee
Charlee

Diffuse Intrinsic Pontine Glioma

This beautiful Golden Octopus Angel Hero is the absolutely gorgeous Charlee.

This was kindly shared by her loving family, Jaime, Darren, and her little brother Ryan (who she called her little rebel).

Charlee was your typical 3 year old princess until 1st April, 2013 when she was diagnosed with DIPG-Diffuse Intrinsic Pontine Glioma.
Life as we knew it was no longer, something that nothing could ever prepare you for, something you never thought could possibly happen to you,
to hear the words that your 3yr old daughter has a 0% chance to beat this and that we had just 9-12 months at best left with her by our side.

Charlee had such a passion for life, throughout her whole 19month fight with DIPG she remained positive, She never lost her passion for life and lived each day to the fullest smiling and teaching us all to never give up, to cherish the moments. She had such a cheeky little personality & loved joking around and having a giggle.

Our princess gained her wings on 2/11/14 and will be forever 5. Our lives will never be the same again,but how blessed we are that she chose us to be her parents.
Charlee's little wishes will continue to make a difference and raise awareness and funding in her memory, for without hope what do we have?

Charlee's Little Wishes is her support page.

Thankyou for sharing your precious angel with us, love always Keely.
I promise I won't stop fighting for them all xx.

Orlando

Orlando

Neuroblastoma
Orlando
Orlando

Neuroblastoma

An amazing Golden Octopus Hero, Orlando's story is shared with us by his beautiful Mum Tina, Dad Levi, Spycer, Willow, and Cleo.
Here is his story as told by his amazing family.

Orlando is one of four in our family. The only boy amongst 3 sisters, Spycer 9, Willow 6 and Cleo 8 months. He was the most beautiful Christmas present in 2013, a healthy baby boy that we had waited for. Unfortunately when he was just 7.5 months old we were given the devastating news that he had stage 4 neuroblastoma, a cancer of the nervous system. His life and ours have been forever changed.

Orlando had treatment in Adelaide, chemotherapy, stem cell retrieval, surgery, stem cell transplant, radiation and immunotherapy. 15 months of treatment in total and he now has no evidence of disease, off treatment for 1 year!

Throughout all of this he has had a sparkle in his eye, a smile on his face, he has been resilient and brave like no child should. He adores his sisters, loves the outdoors, animals, dress ups, water, balls and The Cowboys. His vibrant personality, mischievous ways and cheeky smile light up our world.

We can't thank you enough for sharing your amazing boy with us.
Orlando, little man you are amazing, I have your back and together we will fight for a cure so no child will ever go through this.
Love always Keely xx

Matilda

Matilda

Cancer
Matilda
Matilda

Cancer

Our very special Golden Octopus Hero is the absolutely adorable Matilda.
Her Mum and Dad, Millie and David have so kindly shared her story with us.
This is her story as lovingly told by Mum and Dad (Millie and David), Samuel and Rosie May.

After 6 weeks of attending a rural hospital time and time again because Matilda started limping and then after being sent away from a regional hospital with barely a look at Matilda, finally, a lovely local hospital doctor explained her symptoms to Lady Cilento who accepted Matilda as an in-patient transfer.

Within hours of being seen at Lady Cilento specialist teams quickly noticed Matilda's problem was not her leg.
After a CT scan and subsequent MRI Matilda was diagnosed with a rare and aggressive cancer throughout her brain and spine.

Matilda has an older brother and sister who dote on her, Samuel (13) and Rosie-May (10).
Millie and David are both teachers and migrated from Perth, WA to rural Queensland in January 2015 with their three beautiful children seeking a more rural lifestyle.

Thankyou Millie and David.
We will all keep praying for a miracle and strength for beautiful Matilda and for all of you.
We won't ever give up the fight to help these children and find a cure.
Love always Keely xxx

Caitlin

Caitlin

Cancer
Caitlin
Caitlin

Cancer

This is beautiful CJ.
She is an octopus hero with a great smile.
Love Keely x

Ryan

Ryan

Malignant Melanoma
Ryan
Ryan

Malignant Melanoma

This weeks Golden Angel Octopus Hero...

Sometimes a story touches your heart more than others and as much as I have loved and been touched by every one of our Golden Octopus Heroes, Angels and Buddies, this story has really touched my heart. I cannot say how privileged we are to have Lyn, Iain, Lauren and Thomas share with us the story of our beautiful Golden Angel Octopus Hero Ryan.

RYAN JAMES DOBBIE
13/04/2009 to 3/11/2010

We welcomed our baby boy Ryan into the world on Easter Monday, 13 April 2009. When they put Ryan onto my chest I saw the most beautiful big blue, wise eyes looking back at me. That was not all that I noticed. It looked like he had a mole/birthmark on his forehead and I asked the nurses if that was the case. They were busy as I had a complication with my placenta and little did I realise he also had a birthmark/mole that covered most of his body.
Whilst I was rushed in for surgery, my doctors advised me they had to send photos to Townsville to confirm what Ryan was born with. I did not get to see my little man until the next day, where it was confirmed Ryan was born with a Giant Congenital Melanocytic Nevus and his was a bathing trunk type as it covered him from his knees to the middle of his back and belly. He also had numerous other moles called satellites.
We were told that his condition was pre-melanoma and the chances of it turning to malignant melanoma was between 2-4% of the whole population, so we felt very relieved. There were several tests we had to do to ensure there was nothing physically or mentally wrong and he got the all clear.

During this time, Ryan was the most perfect and lovable little boy. It was very difficult to come to terms with his condition, however his personality outshone the physical imperfections.
Ryan was the most charming little boy and strangers would often comment on how handsome he was.
Most people did not even notice his moles. He always had a smile for everyone and his blue eyes always sparkled.
He would even yell at people who walked passed him without saying hello to him.

Ryan had five surgeries to try and reduce some of his mole and to ensure the ones that looked abnormal were OK.
When Ryan was 16 months old, he was playing outside and fell over. He cried, which is normal for any child and then he got up and continued as normal, but he was limping a little.
He was still like that the next day, so whilst I was at work, my mum took him to the doctors and he was referred for an x-ray, just because the doctor knew Ryan had a very high pain threshold.

That day the x-ray was done and we got a phone call from the doctor saying he needed to see us. That instant, I knew it was serious.
The doctor said there was something unusual and we were asked if there were any previous injuries Ryan had suffered, which of course there hadn’t.
Two days later we were at the Cairns Base for a paediatrician’s appointment and I took the x-rays and report with me. The on call orthopedic surgeon was not there, but was going to review it and get back to us.
The next day our Paediatrician’s office phoned and advised they had made an appointment on Monday for an MRI to be done in Brisbane and that we had to fly down on Sunday.
I said, no as Ryan had to go there anyway on Tuesday for surgery, however they insisted we went sooner.

My mum went with me as she didn’t want me to be on my own. The MRI was done and Ryan was gone for hours, it was breaking my heart.
That afternoon when Ryan was in recovery and mum had gone back to our unit to make lunch, the oncologist came to me and said the results were back.
He confirmed it was cancer, so I immediately thought Ryan would lose a leg and he would have to learn to walk again.
I was devastated to be told that Ryan’s cancer had broken the leg he was walking on.
The cancer was also through his whole body (liver, bones etc) and that there was nothing they could do for us.
I had to get the doctor to get my mum to come and tell her as well as me as I couldn’t deal with this news alone.
My mum came and were pretty much told us that Ryan did not have a lot of time and asked us what we wanted to do.

My husband and daughter flew down from Cairns and we made memory items, videos and went to zoo’s etc.
We all slept on the floor together and we cried when the kids were asleep.
The palliative care team and social workers and the doctors were wonderful to us. A plan for his management was set up and we came home to enjoy every last minute with Ryan.

We had a party for Ryan. Friends and family and strangers all contributed. There was a merry go round, zoo to you animals, face painting, jumping castle, games, presents and lots of food.
Ryan was so happy, he was even a bit naughty with my CDs. He got sprung rubbing them into the ground and just gave a cheeky smile when he got caught.
Ryan was very mischievous and happy. He never made a fuss and he had been through so much with the operations, he was so tough and brave.
He had such a boisterous laugh and he and his sister loved each other dearly.
Ryan lived life to the full and was always full of energy and knew he was loved.

Ryan passed away 11 weeks after his diagnosis and our hearts were forever broken.
He was only 18 months of age.
We only got to celebrate one birthday and Christmas with him and those days will be forever in our minds and hearts.

Always and forever loved and in our hearts
Mum, Dad Lauren and Thomas.

Thank you so much for sharing your gorgeous boy with us.
He will touch many more hearts and help to let everyone know that childhood cancer isn't rare.
We all need to stand together to fight this and make sure other families don't go through this anymore.
I promise you Ryan and your amazing family I will never stop trying to make the world listen and fight for our kids.
All my love Keely xx

Kybie

Kybie

Brain Cancer
Kybie
Kybie

Brain Cancer

Our amazing and cute Golden Octopus Hero is the wonderful Kybie.
Kybie was diagnosed with brain cancer in 2013 and has come a long way following many treatments and surgeries.
Like myself Kybie loves Lee Kernaghan, our wonderful ambassador and got the chance to meet him recently.
Keep singing Kybie.
Lots of love Keely xx.

Truman

Truman

Hodgkins Lymphoma
Truman
Truman

Hodgkins Lymphoma

I am so pleased to honour a wonderful hero, Truman.
Truman's Mum Michelle and Dad Wayne bring us his story below which we thank them so much for.

Truman was rushed to Lady Cilento Children's Hospital on Good Friday 2015.

He was later diagnosed with Hodgkins Lymphoma stage 3B. He was 15yrs old.

He had a small lump pop up next to his collarbone. He had not been 100% but like running at 90%. He was 15 and about 6ft 2 with lots of growing. We Took him to the doctor and after a week of blood tests and no answers except major inflammation, but no idea where, and because it was Thursday before easter break they decided to do a CT scan.

7am Good Friday we got a call from doctor to go straight to Lady Cilento Children's Hospital Emergency they are expecting him. The CT showed all of his lymph glands enlarged. When we finally got to see a doctor at LCCH he said he would have got Truman flown down on his results earlier but our Doctor told him he was still doing everything he normally would. The LCCH doctor also said when he saw how tall he was that he shouldn't be able to stand up with the amount of red blood cells he had. After the biopsy we were able to go home on Sunday and wait for a diagnosis. It took about a week and the longest week ever.

We were putting cattle through the yards when the call came through. I'll never forget because i was on headbale and I'd left it open to answer the phone and all I could hear was me getting in trouble for letting some cows through, and the Oncologist asking "is this a good time"?? However when is a good time to find out your child has cancer?
So we went back for more testing to find out what stage he was at and then a treatment protocol.

He had 6 months of chemotherapy and 1 month of radiotherapy. He finished his treatment in time to have Christmas at home.

Truman's time in Brisbane was difficult as he is a country boy and he loves fixing machinery. Every chance we got to come home he was straight down to the shed working on a little dozer he had started to rebuild before being diagnosed.

Thank you so much Michelle, Wayne, Kasey and Codie for sharing your amazing man with us, it is such an honour.
Truman you are just amazing, you have fought an enormous battle.
We will continue to fight for all of you so no one has to go through this anymore.
By sharing, your story helps raise awareness and by doing that we will hopefully one day get the government to increase the funding for research which is only 4%.
Keep fixing those dozers that is awesome.
Love Keely xx

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