Angels & Heroes

Meet the beautiful faces of Childhood Cancer.
Every one of these little heroes has been through more in their young lives than anyone ever should.

Not all superheroes wear capes

Cayden

Cayden

Brain Cancer
Cayden
Cayden

Brain Cancer

Kael

Kael

Cancer
Kael
Kael

Cancer

Our wonderful Octopus Hero the amazing Kael.
He is battling the same cancer as me and we love him to bits!
Thanks for being a great fighter Kael
Love Keely xxx

Sophie

Sophie

Retinoblastoma
Sophie
Sophie

Retinoblastoma

We have an extra special and absolutely gorgeous Golden Octopus Hero I would love to honour, the beautiful Sophie. t
Thanks to her wonderful family and my friends Matt, Hannah and Lucas, together with Arlo and Susie they bring you her amazing story.
As told by her loving Mum.

Sophie was 6 weeks old when we found out about her Retinoblastoma in her right eye. Sophie was 7 weeks old when we flew to Brisbane so we could meet with Doctors to figure out what had to be done to save her life. Then we discovered that she had to have her tumour and her eye removed and replaced with a donor eye as well as a lens that sits in front of it.

Sophie was only 8 weeks old when surgery was done. Sophie was lucky enough not to have to go through chemotherapy but still had to have frequent visits to Brisbane every 3 months for the first two years and then 6 monthly appointments with her last appointment being in July 2016.

Sophie is a strong happy little girl and we are very lucky to have her here today.. Sophie has a big brother Lucas as well as her pet kitten Arlo and her fighter fish susie.

She is our hero

Thank you from the bottom of my heart Hannah, Lucas and Matt for sharing your absolutely amazing girl with us.
I am proud to call this family my friends and Sophie is definitely a true hero.
Thank you for everything you all do for our foundation we really appreciate it.
Together we can make people sit up and listen and together we can make a difference.
Sophie I promise I will never stop fighting for all of you because no one deserves it more than our kids.
All my love Keely xx

Maddie

Maddie

Neuroblastoma
Maddie
Maddie

Neuroblastoma

Our beautiful and amazing Golden Octopus Hero is the gorgeous Maddie.

Maddie was diagnosed with stage 4 Neuroblastoma when she was only 8 months old.

Her amazing family Courtney, Rob and big sister Charli have shared their beautiful girl with us , thank you.

Maddie was diagnosed in January 2014, she was treated at Princess Margaret hospital in Perth where she had 4 rounds of chemo and then major surgery which lasted for 8 hours, they removed 75% of the tumour from her right adrenal gland.
She then went through another 4 rounds of chemo. Maddie has been no evidence of disease for 12 months and is a happy and gorgeous girl.

Beautiful children like Maddie who are so tiny, should not be spending all this time in hospitals for chemo and surgeries, they should not be crying in pain instead of laughing and growing.
They shouldn't have to worry about cancer returning or the complications of treatment.
We need to join together all across Australia and the world and fight for more funding to find a cure for this terrible disease.
Maddie, I will never stop fighting and one day beautiful children like you will not have to suffer any more.

Love always Keely xx

Aria

Aria

Neurocytoma
Aria
Aria

Neurocytoma

Our gorgeous Golden Octopus Hero is the lovely Aria.
Her family have so kindly shared her story with us to help raise awareness but also to see if there may be other cases similar out there that they could contact.
This is her story as lovingly told by her Mum Debbie, Dad Adam, sister Imogen, brothers Ryan, EJ, and Ethan and her dog Jewel.

Aria was diagnosed with a 6cm rare central neurocytoma in her left ventricle (brain), surgeons operated the next day and after an 8hr surgery she recovered well.
We then got news from the biopsy it was as expected but it was an aggressive form and was multiplying 10x faster than average, and no one seems to know what that means for her.
This type of tumor is normally only seen in 20-30yr olds and is only usually treated with surgery or radiotherapy (which radiotherapy isn't an option in this case), therefore after emails to worldwide leading oncologists it is a mixed opinion on treatment and whether to proceed with high grade chemo or wait to see how aggressive it is going to be.

We are seeking other cases worldwide that may not have been documented to see what treatment was offered and outcomes to give us more insight as there are only 2 that we know of currently.

Since surgery, she has had a shunt inserted due to hydrocephalus and the oncologist decided on the wait and see approach. Her 3 mth scan came back with no new growth except they now think there may have been a small amount missed. I have also been in contact with Oregon University Hospital who have just recently decided to take her on as a patient and test her tumour on the molecular level which hopefully will give us some insight into treatment options etc.

Thank you so much for allowing us to share your story of your brave and beautiful daughter.
With increased awareness and people sharing your story hopefully we can find some similar cases to help.
We will always fight for children like Aria to help find a cure.
Love always Keely xxx.

Matty

Matty

Rhabdomyosarcoma
Matty
Matty

Rhabdomyosarcoma

Our wonderful Golden Octopus, the amazing and good looking Matty.
Matty is back at school following his treatment for rhabdomyosarcoma of his hand.
Loving life and being back with all his mates again.
Still having his checkups but so far doing great.
Well done Matty
Love ya heaps Keely xx

Amelia

Amelia

Acute Lymphoblastic Leukaemia
Amelia
Amelia

Acute Lymphoblastic Leukaemia

Our beautiful Golden Octopus Hero is the amazing Amelia.
We are so honoured to share her story with you all as told by her beautiful Mum Ashley and Dad Kane and buddies Boog and Lola.

Our Amelia was diagnosed at age 3 with ALL (Acute Lymphoblastic leukaemia) on the 22nd December 2015.

She has just completed eight months of intense treatment (thanks to the high risk category) and we started maintenance chemo 1 month ago. Some of the hiccups along the way including steroid induced diabetes.

She likes to keep us on our toes with the rare side effects of the different chemos and we have recently found out she is super sensitive to her daily oral chemo.

She loves to dress up and play with her cousins and we are arts and crafts champions.

Amelia has faced everything that has been thrown at her like a true champ, she is our hero and we love her to infinite.

Thank you so much for sharing your gorgeous girl with us, Amelia shouldn't have to go through this and nor should you as her family.
We will continue to raise awareness so the government will increase funding for all of our children because they are our future.
Amelia you are just amazing and keep smiling beautiful, we will keep fighting together.
Love Keely xxx.

Josh

Josh

Esthesioneuroblastoma
Josh
Josh

Esthesioneuroblastoma

Our amazing Golden Octopus Hero is someone that has truly inspired me, I know every journey is incredibly hard with this terrible disease, but Josh's story is past belief.
This little guy is a true hero in every sense of the word. Josh is 11 years old from Orange in New South Wales.
His journey started at 5 weeks of age and he has only been clear of cancer for the last 12 months.
Josh's family Alison, Dave, Jacob, Sam and Alannah are just amazing as well and have kindly shared his amazing story with us so we can proudly honour him.
Of course his cat Max has had a big part in it as well.

This is his story as written by his amazing family.

It's a long story that spans 11 years and saw me given the option in early 2013 to put him on meds to make him comfortable and let him pass away.

It breaks my heart to even think back to that time because we had fought so hard against this horrible disease, but along with Josh's zest for life, his amazing courage and our wonderful Oncologist we made a decision to give it one last shot....

and here we are today....this is Josh's story....

Josh is 11 years old, he was diagnosed in 2004 at 5 weeks old with Retinoblastoma, his left eye enucleated at 9 weeks old. Right eye was affected at 12 months old with multiple tumours, cryotherapy, laser, sub con chemo, systemic chemo and radiation used over the following 5 years to treat multiple new tumours, relapses and seeding...2 years in remission ....then 2012 a lump found in Josh's neck which led to many tests revealing a mass at the base of the skull the size of a mans fist.

Diagnosis.....Esthesioneuroblastoma..an adult cancer.. intensive chemo for 6 months followed and the mass melted away...then February 2013 he relapsed and the tumour had breached the blood and tissue barrier into the brain, more intensive chemo followed by a stem cell transplant in August 2013...

....we have just marked our second anniversary since transplant and my little hero is NED!! (no evidence of disease )..we are still on 12 weekly MRI's and PET scans given his history.... Josh is our hero!

Thank you Josh and your beautiful family for giving us the honour to share your story.
I am hoping and praying you will stay cancer free and ride your quad bike (with a helmet of course lol), swim in the river and live like a young man should.
Heroes like you make me more determined to keep fighting to find a cure.
Love Keely xx

Riley

Riley

Cancer
Riley
Riley

Cancer

Our wonderful Octopus Hero is my friend Riley.
He is a wonderful young man and like me will have life long hormone replacement because Childhood Cancer doesn't just stop when the treatment stops.
Love ya heaps Riley

Love Keely xx

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