WELCOME TO THE GOLDEN OCTOPUS FOUNDATION

Golden Octopus Found_logo with info 2

September is Childhood Cancer Awareness month!

JOIN US in GOING GOLD to help raise awareness for Childhood Cancer!

During the month of September we are showcasing our special little heroes and angels, the reason for our foundation.

Matty

Matty

Rhabdomyosarcoma
Matty
Matty

Rhabdomyosarcoma

Our wonderful Golden Octopus, the amazing and good looking Matty.
Matty is back at school following his treatment for rhabdomyosarcoma of his hand.
Loving life and being back with all his mates again.
Still having his checkups but so far doing great.
Well done Matty
Love ya heaps Keely xx

Amelia

Amelia

Acute Lymphoblastic Leukaemia
Amelia
Amelia

Acute Lymphoblastic Leukaemia

Our beautiful Golden Octopus Hero is the amazing Amelia.
We are so honoured to share her story with you all as told by her beautiful Mum Ashley and Dad Kane and buddies Boog and Lola.

Our Amelia was diagnosed at age 3 with ALL (Acute Lymphoblastic leukaemia) on the 22nd December 2015.

She has just completed eight months of intense treatment (thanks to the high risk category) and we started maintenance chemo 1 month ago. Some of the hiccups along the way including steroid induced diabetes.

She likes to keep us on our toes with the rare side effects of the different chemos and we have recently found out she is super sensitive to her daily oral chemo.

She loves to dress up and play with her cousins and we are arts and crafts champions.

Amelia has faced everything that has been thrown at her like a true champ, she is our hero and we love her to infinite.

Thank you so much for sharing your gorgeous girl with us, Amelia shouldn't have to go through this and nor should you as her family.
We will continue to raise awareness so the government will increase funding for all of our children because they are our future.
Amelia you are just amazing and keep smiling beautiful, we will keep fighting together.
Love Keely xxx.

Josh

Josh

Esthesioneuroblastoma
Josh
Josh

Esthesioneuroblastoma

Our amazing Golden Octopus Hero is someone that has truly inspired me, I know every journey is incredibly hard with this terrible disease, but Josh's story is past belief.
This little guy is a true hero in every sense of the word. Josh is 11 years old from Orange in New South Wales.
His journey started at 5 weeks of age and he has only been clear of cancer for the last 12 months.
Josh's family Alison, Dave, Jacob, Sam and Alannah are just amazing as well and have kindly shared his amazing story with us so we can proudly honour him.
Of course his cat Max has had a big part in it as well.

This is his story as written by his amazing family.

It's a long story that spans 11 years and saw me given the option in early 2013 to put him on meds to make him comfortable and let him pass away.

It breaks my heart to even think back to that time because we had fought so hard against this horrible disease, but along with Josh's zest for life, his amazing courage and our wonderful Oncologist we made a decision to give it one last shot....

and here we are today....this is Josh's story....

Josh is 11 years old, he was diagnosed in 2004 at 5 weeks old with Retinoblastoma, his left eye enucleated at 9 weeks old. Right eye was affected at 12 months old with multiple tumours, cryotherapy, laser, sub con chemo, systemic chemo and radiation used over the following 5 years to treat multiple new tumours, relapses and seeding...2 years in remission ....then 2012 a lump found in Josh's neck which led to many tests revealing a mass at the base of the skull the size of a mans fist.

Diagnosis.....Esthesioneuroblastoma..an adult cancer.. intensive chemo for 6 months followed and the mass melted away...then February 2013 he relapsed and the tumour had breached the blood and tissue barrier into the brain, more intensive chemo followed by a stem cell transplant in August 2013...

....we have just marked our second anniversary since transplant and my little hero is NED!! (no evidence of disease )..we are still on 12 weekly MRI's and PET scans given his history.... Josh is our hero!

Thank you Josh and your beautiful family for giving us the honour to share your story.
I am hoping and praying you will stay cancer free and ride your quad bike (with a helmet of course lol), swim in the river and live like a young man should.
Heroes like you make me more determined to keep fighting to find a cure.
Love Keely xx

Riley

Riley

Cancer
Riley
Riley

Cancer

Our wonderful Octopus Hero is my friend Riley.
He is a wonderful young man and like me will have life long hormone replacement because Childhood Cancer doesn't just stop when the treatment stops.
Love ya heaps Riley

Love Keely xx

Ryan

Ryan

Glioma
Ryan
Ryan

Glioma

Our amazing Golden Octopus Hero is Ryan.
Ryan's loving family Graham, Mary-Ann, Lachlan and Jordan have so kindly shared Ryan's story with us.

Ryan's only pets are fish due to him needing constant medical appointments, it is hard to have any other pets.
He is visited once a month by Maggie the therapy dog.

Ryan has been diagnosed with a brain tumour (low grade glioma currently stable - his last chemo finished Feb 2014), epilepsy, global development delay and severe intellectual impairment.
Due to Ryan's development delays he is still classed as non verbal although we are starting to get more words happening.
Ryan loves wooden puzzles, action songs/dancing, transport vehicles particularly trains, fire trucks and garbage trucks.
Also loves cows and horses.
Whilst chemo didn't shrink the tumour it has remained stable.

Ryan is our hero too.
Wishing Ryan all the best, thank you so much for sharing and help us to spread awareness.
You tell your gorgeous little man we won't give up fighting,
Love Keely xxx

Rhiannon

Rhiannon

Osteosarcoma
Rhiannon
Rhiannon

Osteosarcoma

Our beautiful Golden Octopus Hero, the amazing Rhiannon.
Diagnosed with osteosarcoma on the 9/9/09.
A prosthetic right humerus and shoulder joint has not stopped her from achieving great things.
Now past the three year mark in remission.
She is doing a Bachelor of Communications majoring in Creative Writing.
What a champion, Rhiannon.
Thanks for showing the kids with cancer what can be done regardless of their diagnosis.
Love Keely xx

Cooper

Cooper

Diffuse Intrinsic Pontine Glioma
Cooper
Cooper

Diffuse Intrinsic Pontine Glioma

Our beautiful Golden Angel Octopus Hero is the amazing Captain Cooper.
His loving Mum Amanda, Dad Michael, sister Jessie and brother Zach, Oscar the cat, Josh his dog, Hero and Trigger the horses have shared this amazing young man with us and we couldn't be more honoured.

This is his story....

Cooper was your average typical 4 year old boy, who was happy and laughing and enjoying life on our property in Hervey Bay. That was until our world fell apart on October 31st 2013, when he was diagnosed with an inoperable brain tumour called DIPG (Diffuse Intrinsic Pontine Glioma).

Our life, his life from that day forward was never going to be the same again, forever altered because of cancer. How do you survive and prepare for the moment that your child will no longer be beside you. To be told that your son has 0% chance at surviving this deadly form of paediatric brain cancer is numbing and soul destroying. How can our son have just 9-12 months to live. This just can’t be.

Cooper had such a love for life. He was not afraid to give anything a go, and was always thinking of others first. He just loved life. Cooper was strong, and determined, and never gave up trying no matter how hard his battle got, he tried and laughed every single day, determined to Never Ever Give Up Hope. This is something that he never lost sight of during his 21 month battle against DIPG. Cooper’s courage was watched by many on his Facebook page Cooper’s Journey and he inspired many, and still does to this day.

Cooper finally lost his battle against DIPG, gaining his angel wings on July 25th 2015, leaving this world “Forever 6”.

This has forever irrevocably changed us, our lives and our dreams and hopes for the future.

Cooper’s Daddy (Michael) and I, along with our family, will endeavour to raise awareness about DIPG and brain tumour/cancers. We are holding a Walk4BrainCancer - Hervey Bay “Cooper’s Walk” on his 8th Birthday Saturday 3rd December 2016, with all funds raised going to support the Cure Brain Cancer Foundation. Details to follow.

You can still follow or read about Cooper’s Journey on www.facebook.com/Cooper.E.ChristensensJourney

Forever six and forever our hero
Loved always and forever
Mum, Dad, Jessie, Zach xxxx

We can't thank you all enough and are honoured to share this amazing little man.
It is so unfair that there isn't any cure for this horrible disease and I promise to help make more people aware so one day the government will listen and help increase funding to find a cure.
Captain Cooper you are my superhero.
Love always Keely xx.

Charli

Charli

Acute Lymphoblastic Leukaemia
Charli
Charli

Acute Lymphoblastic Leukaemia

Our absolutely beautiful Golden Octopus Hero this week is the very cute Charli.

Her amazing family Belinda, Steven and Sienna have kindly allowed us to share her story. Thank you so much. This is her story as written by her wonderful family.
And of course brought to you by her favourite Guinea pigs, Elsa and Anna xx.

Charli's story :

Diagnosed with leukaemia ALL standard risk on 28 June 2013 at age of 2 years.

Charli's symptoms were very minor- high temps 3 days, very lethargic and loss of appetite, but what toddler isn't when sick with a virus, well that's what we all thought it was...until I demanded tests from a Doctor and within an hour we were phoned by them to rush Charli to hospital for immediate treatment......

....our perfect world was about to be turned upside down with the unbelievable news. I clearly remember the ED Doctor saying your daughter has a form of cancer "leukaemia ".....like any parent we didn't want to face reality. ..Charli was flown immediately to Brisbane for urgent treatment ..but as long days turned into weeks n months. ....life changed into a new normal medical lifestyle.......before we knew it Charli's treatment was coming to an end which we thought would never come but recently our brave little princess finished her chemotherapy treatment on 3 September 2015. She can now be a normal 4yr old.

Charli is just so beautiful she should not have had to miss this part of growing up, being confined to tubes, hospital beds and pokes and pain every day. Her family should not have been torn apart and had to endure the stress that comes with that. Together we can be the voice these kids need and we will fight for them. Charli I can't wait to meet you and your amazing family (and your Guinea pigs), I will keep fighting and we will let the world know to send a message to the government that 4% is NOT ENOUGH.
Love always Keely xxx.

Haylea

Haylea

Cancer
Haylea
Haylea

Cancer

Haylea

1 2 3 6

You can support our cause by making a Donation or  purchasing official Golden Octopus Foundation merchandise from our Store.

Overall there are eight groups of childhood cancer so our logo and the octopus represent the eight arms of childhood cancer.

The Golden Octopus Foundation’s objectives are to improve oncology facilities in all regional areas, including the implementation of childhood cancer nurses, this will alleviate long stays away from families and friends. Wherever possible the foundation will also offer support to families and a long term objective will be to assist families to access trials which may not have been possible previously. We will work closely with other childhood cancer research charities to enable this to happen.

The Golden Octopus Foundation Committee is formed by a group of educated and experienced women who are mothers, relatives or friends of children affected by cancer.
Initially the Golden Octopus Foundation will encompass all areas of Queensland, but as it grows so will its coverage of other states of Australia.

Slogan by Keely Slogan

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